terminal illness

terminal illness

Week ONE-Leukodsytrophy Awareness Campaign

1d ago
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September is Leukodsytrophy Awareness month. Join in the fight against this horrible disease. Spread the word, wear your BLUE and SHARE this movie. Olivia is a 5 year old girl battling Alexander Disease. She is pictured at the END of this movie. Olivia cannot sit up, talk, eat, handle secretions, fed through a g-tube, gets constant suctioning. She has to lay on her side to breath and doesn't not move. Children diagnosed with this form have an average life span of 5-7 years. There is currently no cure. For more information on Leukodsytrophy, visit the United Leukodsytrophy Foundaiton website at http://www.ulf.org. Team Olivia Kay also has a website, http://www.teamoliviakay.com. We are her only advocates as her parents.....we educate and share with people everyday what it is like to raise a child with a terminal illness. People need to hear the battles that these little warriors fight! Help us spread the word! Support, Advocate, Cure!!