return to oz

return to oz

Hi Everyone, sharing this song from Quinn, "Somewhere Over the Rainbow" from last April :) She loves the Wizard of Oz, it helps with getting her to drink meds. We say it will make her strong so she can defeat the witch and the Jester (from Return to Oz)

1w ago
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Hi Everyone, sharing this song from Quinn, "Somewhere Over the Rainbow" from last April :) She loves the Wizard of Oz, it helps with getting her to drink meds. We say it will make her strong so she can defeat the witch and the Jester (from Return to Oz) Some updates: - was going to rush her to the hospital for her pallor today but received advise from her hema to monitor for now and watch her heart rate. We'll see him tomorrow to follow-up. - all her IV sites from the attempts and Vincristine shot last friday have become red, swollen and painful. Thanks so much Mommy Dyanne (Princess Dyanne Sumabal) for her Reparil Gel, it's such a big help. - Met with Dr. Racho earlier yesterday (MLA) He said Quinn will need to be in complete remission before we can consider a transplant. He gave us the orders for HLA Typing. - He will be providing us a quote once we have more details from Karyotyping and HLA results. - There may be a challenge with Mallory being a donor because of her age and size. We'll take things one step at a time before we worry for any more... - No Karyotyping results yet. Thanks so much for all your prayers and support. Can't thank you enough... I can't put words for the well of emotions we feel from all you've given for Quinn, all the kind words of hope and courage. and prayers. My strength has limits, it breaks... Quinn is smarter now, she asks about her hair falling. She compares how Mallory gets those fancy clips and she wants them too... We don't have a mirror at home. She hasn't seen herself yet. The last time she did she giggled because she looked like Papa. We find strength it in your posts, in every help sent and in seeing how Quinn is fighting. We are reminded that we are not alone in this fighting this battle with Quinn.... and that Quinn has her warriors like you fighting this disease with her... Thank you from the bottom of our hearts... Grateful as we are for all that you've given, Quinn still has a long way to go. We've only just begun... every share, every like and every cent means so much... We hope you don't get tired of sharing and following <3 God bless you all...